August 6, 2009

Happy T-Day B-Day to me!!

Okay so it has been a while since the party, but I've been sick and busy. It was a lot of fun and we had a lot of cake. We had 22 kids running around the house and backyard! I was trying to make a video of my bald head growing hair, loosing hair and growing it back but it didn't work. My biggest surprise was that Derek's sister Ashlee was in town and so she was able to come with her kids. My boys were so excited to see all of their cousins in their house but one. I also got a fabulous apple tree from Derek's family! I walked in from the backyard talking to some of the kids and there it was in my kitchen.

I saw Dr. McSweeny last month and found out that I don't have to have any more PET scans if I don't want them. Which I think I will take him up on it since I got myself sick last time. He said that the radioactive glucose might be more of a problem to my body down the road and I have already had 9 scans since we found the tumor. I also got my blood drawn to see what immunization shots I need again since my body is new. I should find that out someday soon. I saw Dr. Kanard yesterday and she said besides the cold that I have right now, I look great and I don't have to see her until October! So happy days.

July 7, 2009

Great doctor!

So after waiting a week from the PET scan. I went to the Dr. that delivered Lizzie for a follow up. She had breast cancer a few years before Lizzie was born and I told her how I was still waiting for the results. ( I even think I made myself sick the day after and the next night because of what happened last scan.) Anyway, Dr. King was horrified that I hadn't gotten word about my results yet, because she has been there; so, being my doctor she was able to look up all of my recent tests right there and print it up for me.

Nervously, I looked at the paper and happily I noticed it said that there was no new growth and what they found last time has been less active; meaning I don't have to have a biopsy, and I will get my birthday!! I'm so glad I had my follow-up or I would still be waiting until next week!

I have been so blessed!!! Thank you everyone for your support and love! I will let you know how we will celebrate closer to the 21st!

June 21, 2009

PET scan on Friday

Just thought I would post a recent hair picture.

So last time since the PET scan was off because my body was fighting a cold at the time I am really nervous this time about being around germs this week. Since the boys birthday was last Wednesday we were going to have a birthday party for them on this Tuesday; but I am going to have to postpone it because my sister's family is sick and it might get my family sick and if I am fighting something without even knowing it, it will show up on the scan and they will do a biopsy. I am so freaked out about another biopsy, not to mention waiting 2 weeks to talk to Dr. McSweeny about the results.

The good news is that in exactly 1 month it will be my year birthday from the transplant, so I will be a one year old again.

March 22, 2009

Newest PET scan results

So last Friday the 13th I had a routine PET scan. Thursday I went to Dr. Kanard to get the results. At first we had fun talking like every visit that she doesn't tell me bad things. But then we went over the scan. She said that a lymph node that is in the area of the original tumor had a greater SUV intake which means that it used more of the radioactive glucose than last scan. Don't freak out yet though, her next words were that if I had been fighting a cold (which I was since I got it 3 days later) it would show up in the PET scan. Any congestion would show up and cause a false reading. She was about to send me to the surgeon that did the original biopsy a year and a half ago.

We are going to wait a couple of months until all of the bugs are out of our house and no one is sick and then take the PET scan again. Hopefully next time it will be a whole lot cheaper and accurate. In the mean time I will meet with Dr. McSweeney again to review the scan with him.

January 25, 2009

Another check up

So Thursday I went for a check up with my Oncologist Dr. Kanard. She said I look great for 6 months past transplant. I had blood work done to check my kidneys, heart, liver and check if there are any signs of Lymphoma. So far I haven't gotten any calls which is good news. Next visit I have to have another PET scan, it will be in March, so it looks like every 4 months I will have one until I hit 5 years post transplant.
Last night, since I stopped taking anti-viral meds about a week ago, I got some stomach bug and threw up twice. It was Denver all over again.

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