July 31, 2008
July 30, 2008
We just got the CBC results; my white blood count went up to 0.3 from it being 0.1 since Sunday. My red blood count went up to 29.5, so I don't have to have another blood transfusion; and my platelets went up to a 10 so I will have to get platelets but that's it. So only an hour or so. Since all of my numbers are going up a little I might be grafting soon!! Very exciting!
We also finally got the Oakwood people to get housekeeping to the apartment, but we couldn't really tell once we got home that they actually came. I do have some bad news; at first Kelly (our coordinator) said that we would probably be here for a total of 22 days; chemo and all. Today Dr. McSweeny said I will have to stay here for 20-25 days post transplant. So it will probably be a whole week that I have to stay more than I expected. Hopefully, Derek and the kids can come down soon.
July 29, 2008
Tonight many of my friends from church cleaned my house. If any of you are reading this, I just want you to know how grateful I am; and I hope the house wasn't too horrible. My mantra today is not all sarcasm; life might not be so great right now; but living is sure wonderful.
July 28, 2008
We had a very exciting night last night; We found that the diarrhea that I've been experiencing is because of a bacteria called C-Diff, a very nasty bacteria that is in almost every human but the good bacteria usually fights against it. So I am on another antibiotic to get rid of that. I also experienced a slight fever last night so we had to call the after hours nurse. She came and found that the fever kit that was sent to us didn't have all of the supplies she needed. The good news is that my temperature went down and so I didn't need to go to the ER. My temperature is back to normal again today.
July 27, 2008
And today, her red blood cell count dropped below the magic number... 25% (it's been hovering between 25 and 30 for the past 5 days). So, we'll be off to the hospital for a transfusion of red blood cells. That'll take several hours and then we'll head back to the apartment. Just fyi... the normal range for red blood cells is 38-48%. All this is normal. Most patients have 2-4 transfusions. We'll be happy to get away with just this one. Also, her platelet level is getting close to that magic number of 10 (K/uL). Her current platelet level is 14. Normal is 150-400. If she drops below 10, we'll be back to the hospital for another transfusion (of platelets this time).
So, it'll be a fun day of sitting in the hospital while hooked up to a machine.
July 26, 2008
July 24, 2008
July 23, 2008
So, with this rhyme/mantra thing... we're looking for some help coming up with good ones. Send us emails with your suggestions and everyday we'll post them in the blog. We're looking for some fun creativity from everyone. Make us (and everyone who reads them) smile! This will be your chance to become a famous (or infamous) poet!
July 22, 2008
The exterminator came today and couldn't find any bed bugs but he set up sticky tape around the walls to get them if they come out at night. The crib is gone so hopefully there will be no more worries. I just hope Lizzie is still okay and it didn't go back to Johnstown with her, my poor sweetie. It is so hard right now to be away from my kids. I think I called home at least 5 times.
July 21, 2008
The kids went back up to Johnstown today; it was so very hard to see them leave. Hopefully they will be able to come back next week. We have had one problem with this apartment since we got here and hopefully it will be remedied soon. Lizzie had a rash on her head and back, she itch the whole time she was here. When they got home Carla, Derek's mom took her to the pediatrician he said it looks like bed bugs, yeah. So the crib that they put in our room for Lizzie had bugs in it, and it might be in our clothes and the rest of the sheets. This apartment wasn't really cleaned when we got here, there is a pee stain in the corner, the bathroom that I have to use alone is really dirty on the grout and they don't have any housekeeping unless you speed $100/week. We have to either go to another hotel for the night and wait for an exterminator tomorrow to see how bad the bug problem is; or stay in it until we get more information. I'm just glad she didn't have chicken pox or something else.
July 20, 2008
Tomorrow the plan is to go in at 9:30 and get IV fluids for an hour the stem cells through an IV and then another hour of fluids. The nurse today said that the preservatives that they put in the stem cells smell so for the next 24 hours I will smell pretty much like rotten garlic everyone around me will smell it. Today I got a CBC and 2 hours of fluids, patassium and magnisium. They told me after I start the antibiotics, antifungal and antiviral pills I will have a fever and have a blood transfusion. After 5-10 days they will give me shots to boost my white blood cells so my immune system will go up after that. I think within the next few days I will have the no white blood cells at all.
July 17, 2008
The boys and Lizzie got to go with Grandma and Grandpa and two of their cousins to the zoo today so they had a very, very fun day already. They even came back with new snake toys. Right when they came back to the apartment they feel asleep.
Oh, well here is trip #5 to the bathroom!
July 16, 2008
July 15, 2008
Today I feel much better. We even found the pool for the kids and the laundry room in the apartment. The kids are on there way down to Denver now. They didn't join us yesterday because the apartment company didn't have the 2nd bedroom furnished. They will actually get the bed in there tomorrow so tonight they will sleep on the floor or on the couch in the living room. They already have a crib in the master bedroom. So last night we talked to the boys through the web cam. It was pretty hard because they were moving a lot and the sound kept going out. They kept asking if I was okay and it was really hard not to cry. Isaac almost cried when he was asking to come to Denver last night but he did a good job of being a big boy. I can't wait to get my hugs and snuggles tonight.
July 11, 2008
July 7, 2008
So now I just wait and try to have as much fun with my family as possible before next Monday. We are planning on going to the Drive-in and Red Robin for sure the other things are up in the air. We also had a great 4th. We had a breakfast at our church in the morning where a boy that I have never seen before came up to me and asked me why I had a scarf on; I told him because right now I am bald. He immediately asked"do you have cancer? and then he said "oh, I feel sorry for you." And then he started talking about Lizzie as if she were a boy. I kept thinking, somebody had to pay him to say this.
July 2, 2008
Today I went to Walmart and got my oil changed. They called me on my cell phone to let me know that I had a platelet count of 19; so hopefully that means I can collect all today. The machine is very interesting that I am hooked up to. It looks like a giant old tape/computer from the 80's. It even has little black spinning wheels. They connect four tubes to my catheter and hook it through the machine and the blood comes out of my body and goes through the tubes into a container that scoops out the top of the blood where the stem cells are collecting; and then it rotates through to a heater and goes back into my body. So far I am a little cold and light headed but for the most part I am not that bad. At Walmart I got to movies to watch; Mr. Deeds and Runaway Bride, and I got pencils and a sketch book so I am all set.